Welcome!

Hi there! Thank you all so much for stopping by my page. I hope this can serve as a source of encouragement and support for young women with Turners Syndrome and anyone else who may deal with a rare illness on a day to day basis. To start, I’d thought I would tell you a little bit about myself.

I am a 28 year old from Northeast Ohio who was diagnosed with Turners Syndrome at birth. I have an older and a younger sister. Growing up, I never let me TS diagnosis define me. I participated in many sports such as basketball, softball, tennis, and swimming. Swimming was always my favorite. To this day, I love being by the water! Sports were great and kept me active, but my passion was really the arts. I loved dancing, singing, and theatre. I was in numerous school plays, involved in show choir, and loved being on the stage. I was your average girl growing up, enjoying not only extracurriculars but spending time with friends and family. I went to a normal public school where I made the honor roll and took honors courses. I then excelled in college, pursuing not only my Bachelors degree but also pursuing a Masters degree.

While I had a fairly normal childhood, it was not without it’s bumps in the road. At the age of six, I had my first open heart surgery to correct my congenital heart defect that was related to Turners. After that, I continued following up with my cardiologist and all my other specialists. Healthwise, everything was standard growing up after that surgery!

As I grew up and entered my twenties, I started to experience more health issues. My cardiologist looked at my most recent scans and determined I needed my second open heart surgery. I had that surgery when I was 20 years old. After that, my heart health had been great! After finally adjusting and getting back to normal after my heart surgery, I started experiencing some more hormonal imbalances (a result of Turners) that led to some other complicated health issues.

Overall, I’m just your average 28 year old who enjoys traveling, writing, binge watching Netflix, exercising, and spending time with friends. I’ve had my fair share of obstacles I have had to overcome but that is why I wanted to start this page. I want to share my experience of growing up with TS as well as take you all on the journey of navigating having a rare illness as an adult women in today’s world. My hope and prayer for this is that you all can find some encouragement and support from me sharing my experiences.

Thank you all for stopping by and I can’t wait to share more with you <3

XOXO - Jen